Fibromyalgia and/or Chronic Fatigue Syndrome Links
The CFIDS Association of America is the nation's leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS). Go to: http://www.cfids.org.
The National CFIDS Foundation, Inc. was founded in February 1997 by two 14 year activists of the movement. The goals of the Foundation are to help fund medical research to expedite a treatment and eventual cure, to provide information, education, and support to those people who have Chronic Fatigue Immune Dysfunction (CFIDS) -- also known as Myalgic Encephalopathy (ME) and Chronic Fatigue Syndrome (CFS) -- and related illnesses such as Gulf War Illness.
Fibromyalgia Network is not only the name of a newsletter publication on FMS, but it also stands for a small group of patient advocates who maintain their Web site and answer a toll-free phone number, (800) 853-2929, for people living within North America. Their goal is to provide as much free information to anyone interested in learning more about FMS. To help you stay up to the minute about everything that's going on in the field of FMS, check out the Fibromyalgia Network at http://www.fmnetnews.com/
The National Fibromyalgia Partnership, Inc. is a 501(c)(3)
non-profit membership organization committed to the promotion of fibromyalgia
education and awareness through the dissemination of quality, medically accurate
information. Check their web site at: www.fmpartnership.org.
The American Association for Chronic Fatigue Syndrome (AACFS) is a
non-profit organization of research scientists, physicians, licensed medical
healthcare professionals, and other individuals and institutions interested in
promoting the stimulation, coordination, and exchange of ideas for CFS research
and patient care as well as periodic reviews of current clinical, research and
treatment ideas on CFS for the benefit of CFS patients and others. Check
it out at http://www.aacfs.org.
The CFIDS CFS M.E. FMS GWS Directory: http://www.theriver.com/Public/cfids
A new Web site offers CFS, FMS and GWS
information on the various causes of symptoms, the tests for each, and the
treatment for each. It advocates an
approach based on biochemistry, scientific research, and medical evidence
without prejudice to any one form of medicine.
Check it out at http://www.BeatCfsAndFms.org/index.html.
Immune
Support (the
largest CFS & FMS site on the Web): http://www.immunesupport.com/
Cuddle
Ewe Underquilt’s web site has some good FMS information in it.
Check them out at http://www.cuddleewe.com/.
The CDC lists CFS support groups at: http://www.cdc.gov/ncidod/diseases/cfs/support/supus.htm.
Fibrohugs
(largest interactive FMS site designed for the
entire family):
http://www.fibrohugs.com/
Fibromyalgia
Patient Support Center (discussion
board/information for people who are concerned about FMS) http://www.fmpsc.org/
Fibromyalgia Online offers a bi-monthly online newsletter from the
National Fibromyalgia Awareness Campaign. Check
it out at http://fmaware.org/.
CINDA,
the Chronic Immune and Neurological Diseases Association, was developed to
address the issues of all “invisible” diseases.
It is an Internet-based advocacy organization supporting education and
promoting the goals of all invisible disease groups.
They offer listings of support groups, advocacy groups, medical
information, and personal web sites. CINDA
also offers a full-service public relations department.
Check it out at: http://www.cinda.org/welcome/welcome.html.
Centers
for Disease Control and Prevention CFS page:
http://www.cdc.gov/ncidod/diseases/cfs.
The
Invisible Disabilities Advocate (IDA) is a great site. Do your loved
ones have a difficult time understanding your illness, because to them you
"LOOK" fine? IDA's publications help friends and family see the
courage and determination it takes to live with a disabling illness, amidst the
challenges, frustration and losses. Check out http://www.orci.com/~invisible.
William Collinge, PhD, who pioneered the first mind/body medicine program for CFS, has made his book, Recovering from Chronic Fatigue Syndrome: A Guide to Self-Empowerment available free online at www.healthy.net/collinge/cfs.htm. It describes the nature and course of CFS, and the key principles and practices that have helped many former sufferers heal and reclaim their lives. Collinge reports, “CFS remains a complex chronic illness with no medical cure. Self-empowerment remains the most viable pathway for coping and promoting the recovery process.