years ago I noticed whenever I would tip my head back I would get dizzy.
I found doing several things like hanging curtains, reaching in
high cupboards, changing a shower curtain, working on the bulletin board
at school, or getting my hair shampooed at the beauty salon would
immediately cause me to become nauseous.
I learned to compensate for many of these things by using a step
stool to reach high places. Dr. Bochna arranged for my
appointment at Mayo Clinic in Sept of 1999.
They found I had hyperparathyrodism, Chiari Malformation I, and
Carol Jean Downs
On a morning in January 1995, the local newspaper had a full-page article
on two women stricken with an illness called chronic fatigue syndrome.
The article descried how these two dynamic women were struggling with
every aspect of their lives because of their health problems. It
then announced the beginning of a support group for people diagnosed with
chronic fatigue syndrome and Fibromyalgia syndrome (FMS).
Connie Pich took a deep breath and said, "I'm not
"When Alice asked me to write a testimonial about the effect my
illness has had on my life I was somewhat hesitant because of 'baring my
soul' to everyone. However,
after thinking it over, I decided what better way to educate people than
to share portions of the letters my husband and I had written to Social
Security to obtain my disability. This gives both the perspectives
of the victim and the support person." Elaine
was diagnosed with Fibromyalgia in March of 1997 after a period of extreme
muscle pain. I still
experience the muscle pain, but not on a regular basis.
By far, my most profound symptoms are those associated with Chronic
" Gloria Zeitler
my co-worker, Harry, was diagnosed with Fibromyalgia, I thought to myself,
'This is the worst case of
Fibromyalgia I’ve ever seen. There’s got to be more going on
here.' The main difference
was his passing out and the extreme
pain. After his successful chiari malformation surgery, I
wanted others in our support group to hear Harry’s story.
My thanks to Kim and Harry for sharing
of the most difficult things I have to deal with is not being able to do
things I used to do, such as carpentry and furniture upholstery.
When I had a building project, I just did it myself.
Now I must wait for someone to help me.
It is hard to take." Joyce Jobgen